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Health: Chronic Health Conditions

girl power Tips for living a full life with chronic health conditions The National Information Center for Children and Youth with Disabilities National information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals. Our special focus is children and youth (birth to age 22)
Patients in Transition: Bridging the health care gap from youth to adulthood The goal of transition is to provide health care that is uninterrupted, coordinated, developmentally appropriate and psychologically sound prior to and throughout transfer into the adult system Skill: The National Bureau for Students with Disabilities Promotes opportunities for young people and adults with any kind of disability in post-16 education, training and employment across the UK
Beach Center on Families and Disability Investigates how the core concepts of disability policy affect professional practice; and, in turn, how practice, especially in the form of partnerships among families, professionals, and agencies, affects families' quality of life Healthy Youth Information from the National Center for Chronic Disease Prevention and Health Promotion
Questions and Answers About Juvenile Rheumatoid Arthritis Information from the National Institute of Arthritis and Musculoskeletal and Skin Diseases Chronic Illness Resources for Teens Stories written by teens living with chronic illnesses
Youth With Disabilities Information on employment and benefits from the US Social Security Administration Starbright Foundation Dedicated to the development of projects that empower seriously ill children to combat the medical and emotional challenges they face on a daily basis. STARBRIGHT projects do more than educate or entertain: they address the core issues that accompany illness the pain, fear, loneliness, and depression that can be as damaging as the sickness itself
Teens With Crohn's Disease Website A place to share stories and information - for teens, by teens - with Crohn's Disease, Colitis, or IBS Children Living with Inherited Metabolic Diseases A national (UK) umbrella organisation working to ensure the best possible quality of life for children, young people and families affected by metabolic disease and alleviate their suffering with the ultimate aim of prevention and cure
The Sibling Project Services for brothers and sisters of children with special needs (disability and chronic illness) Psychosocial Risks of Chronic Health Conditions in Childhood And Adolescence Health care for children and adolescents must be expanded to include more than management of their chronic condition and intercurrent acute illnesses. Pediatric care should also maximize children's functional abilities and sense of well-being, their health-related quality of life, and their development into healthy and productive adults
Transitions to Adult Health Care for Adolescents and Young Adults with Chronic Conditions Outlines the principles of planning for smooth transitions from one system to another Chromic illness and teenagers A discussion of some of the psychological challenges


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